SPOR Patient-reported experience measurement (PREMs) and Patient-reported outcome measurement (PROMs) national contact list
- Maria J. Santana, MPHARM, PhD, Director, The Methods Hub, Assistant Research Professor, University of Calgary, Department of Community Health Sciences
Dr. Maria Santana is an Assistant Research Professor at the University of Calgary, W21C Research and Innovation Centre, O’Brien Institute of Public Health and the Department of Community Health Sciences. Dr. Santana completed a degree in Pharmacy and a Master in Pharmaceutical Technology at University of La Laguna in Spain. In 2009, she received her PhD in Clinical Epidemiology from the University of Alberta.
Dr. Santana is a patient-reported outcome measures methodologist. The adoption of patient-reported outcome measures as standard practice at the University of Alberta Hospital lung transplant clinics is an outcome of her doctoral research. Current research interests include patient-centered care, patient engagement, transitions of care, the practice of Iyengar yoga for chronically ill individuals, and quality of care.
- Tolulope Sajobi, PhD, Methodologist, The Methods Hub, Assistant Professor, University of Calgary, Department of Community Health Sciences
Dr. Sajobi received his PhD in Biostatistics at the University of Saskatchewan. He is a methodologist, trained in the theory and application of statistical methods to real life problems. His research interests include analysis of longitudinal data, multivariate statistics, and methods for analysing quality of life outcomes. He collaborates with academics, clinicians, and applied researchers on various research projects using statistical tools to extract valuable information from large datasets.
- Rick Sawatzky, RN, PhD Canadian Research Chair in Patient Oriented Reported Outcomes, Professor, Department of Nursing, Trinity Western University.
Rick’s research focuses on methods of patient-reported outcomes (PROs) and quality of life measurement, and the intersections of spirituality, religiosity, culture, and other sources of diversity in various health care contexts, including those for people with chronic life-limiting conditions. He has particular interest in examining the implications of population heterogeneity with respect to individuals’ self-reports about their health status and quality of life. His current research includes studies about a palliative approach in nursing, the use of computerized assessment systems, methods for the measurement of quality of life in longitudinal studies, spiritual and religious diversity in health care, educational approaches for patients with colorectal cancer, and patients’ experiences with knee surgery.
His clinical background is in palliative care and medical nursing care. He has been part of the School of Nursing faculty at TWU since 2002 and have taught in undergraduate courses on nursing research, medical and surgical nursing, nursing care of older adults, and health assessment. He teaches courses on knowledge synthesis and quantitative research methods in the master of science in nursing program.
- Bryan Stirling, PhD, Director, Centre for Clinical Epidemiology and Evaluation, Professor, University of British Columbia, School of Population and Public Health.
Dr. Stirling Bryan is a trained economist with a career-long specialization in the economics of health care. His PhD (Economics) was obtained from Brunel University (UK), following a Masters (Health Economics) from the University of York (UK). For over 20 years he has been a university-based practicing health economist with extensive engagement to the policy and decision making world. The vast majority of his career has been spent in the UK, initially in London (appointments at St Thomas’ Hospital Medical School and then Brunel University) and subsequently in Birmingham (senior lecturer and then full professor at the University of Birmingham). He has taught health economics to undergraduate economists and medical trainees, to postgraduate health economics students and to health sector professionals.
His research track record reveals a longstanding goal of informing policy and practice. This is demonstrated, in part, through an extensive involvement with the UK National Institute for Health & Clinical Excellence (NICE). For many years he led the University of Birmingham team that conducted economic analyses for NICE, and subsequently served for 3 years as a member of the NICE technology appraisals committee, advising on coverage policy. In 2005 he was awarded a Commonwealth Fund Harkness Fellowship and spent one year in the US, based at Stanford University, researching technology coverage decision making in US health care organisations. His published papers reveal an ongoing research interest in coverage decision making processes.
Since his relocation to Canada in 2008 (appointment as full professor in UBC’s School of Population & Public Health, and Director of the Centre for Clinical Epidemiology & Evaluation, VCH Research Institute), he has continued a focus on policy-relevant research. His current position, sponsored by Vancouver Coastal Health, sees him working alongside policy colleagues in one of BC’s largest regional health authorities.
- Lisa Lix, PhD, P.Stat., Professor, University of Manitoba, Adjunct professor, Department of Community Health and Epidemiology, College of Medicine, University of Saskatchewan, Adjunct Professor, School of Public Health, University of Saskatchewan, Manitoba Research Chair.
Lisa is Professor and Manitoba Research Chair (2012 – 2017) in the Department of Community Health Sciences at the University of Manitoba, Director of the Data Science Unit in the George and Fay Yee Centre for Healthcare Innovation, Senior Scientist at the Manitoba Centre for Health Policy, and Adjunct Professor in the School of Public Health and Department of Community Health and Epidemiology at the University of Saskatchewan.
Her research interests include health services research methodology, quality of administrative health databases, the analysis of repeated measures and longitudinal data, and robust statistical methods for patient reported outcomes. Lisa collaborates widely on projects about population health and the association between chronic disease and quality of life. Lisa has served the Statistical Society of Canada since 2005 in various capacities and was President of the Biostatistics Section in 2010. She is currently co-chair of the Science Committee for the Public Health Agency of Canada’s Canadian Chronic Disease Surveillance System.
Newfoundland and Labrador
- Brendan Barrett, MB, MSc, FRCPC, Professor of Medicine (Nephrology), Faculty of Medicine, Memorial University, Director, NL SUPPORT.
Brendan is a Professor of Medicine and Clinical Epidemiologist at MUN, Chief of Nephrology at Eastern Health, who has substantial experience at evaluation of health interventions including acute care restructuring, randomized trials in radio contrast use and in disease management strategies in prevention of cardiac and renal events in chronic kidney disease. He also has expertise in cost effectiveness research, and in data synthesis for clinical decision making.
- Lisa Cardinal, Director, Corporate Planning, Reporting and Evaluation, Department of Health and Social Services, Government of the Northwest Territories:
- Gabriela Ilie, MA, PhD Assistant professor, Department of Community Health and Epidemiology, Department of Urology, Department of Psychology and Neuroscience, Faculty of Medicine, Dalhousie University, Endowed Soillse Research Chair in Prostate Cancer Quality of Life Research
Dr. Ilie’s substantive interests are in the areas of prostate cancer health related quality of life measures, patient-reported outcomes, population health, mental health, substance use, concussions and traumatic brain injury, injury prevention, and health policy. She is particularly interested in the intersection of chronic illness and various patient-reported disease-specific and health related quality of life outcomes, with a special emphasis on adolescents, adults and aging.
- Zarah Monfaredi, MSc, OMC SPOR Program Facilitator Zarah completed her Master of Science (MSc) at the University of Edinburgh in Global Health and Public Policy. In her capacity as OMC SPOR Facilitator, she works to promote patient-oriented research methods and supports more effective, cost-efficient ways of delivering health care.:
- Sara Ahmed, MSc, PhD Associate Professor; Chercheur régulier, C.R.I.R. (Centre de recherche interdisciplinaire en Réadaptation) du Montréal métropolitain.
Dr. Ahmed conducts research aimed at improving health outcomes for individuals with chronic disease. Her research includes studies that 1) address the challenges of using patient reported outcomes (e.g. health-related quality of life, self-efficacy) in chronic disease management programs, and the use of advanced psychometric approaches for improving the precision and efficiency of outcome evaluations, 2) develop and evaluate the impact of chronic disease computer-enabled self-management interventions integrated into electronic personal health records (e.g. web-based asthma and COPD self-management applications), and 3) knowledge exchange and transfer related to best practices for chronic disease management.
- Susan Bartlett, PhD Associate Professor, Faculty of Medicine, McGill University; Canadian representative, Patient Reported Outcomes Measurement Information System (PROMIS) International Steering Committee Susan Bartlett, PhD, is Associate Professor of Medicine in the Divisions of Clinical Epidemiology, Rheumatology, and the Respiratory Epidemiology and Clinical Trials Units at McGill University and the McGill University Health Centers.
Dr. Bartlett is a clinical psychologist by training with longstanding research and clinical interests in patient-centered research and care and meaningful patient engagement in research. She serves as Co-Principal Investigator on three awards from the Patient Centered Outcomes Research Institute in the US. Other work has been funded by the CIHR, the National Institutes of Health, the Arthritis Foundation, the American Thoracic Society and others. Dr. Bartlett is a steering committee member of the National Institutes of Health PROMIS International Initiative. Patient Reported Outcomes Measurement Information System (PROMIS®) is a system of reliable and responsive measures of patient–reported health status for physical, mental, and social well–being. Dr. Bartlett’s current research is using the approach to look at brain health in HIV, scleroderma, asthma, multiple sclerosis, arthritis and COPD. A growing focus of her work has been on identifying and addressing the education and support needed for all members of the research team to fully engage patients in designing, conducting, and disseminating the results of patient-centered research.
- Tracey Sherin, BSc, MSc, Director, Data Analysis and Research Partnerships, Health Quality Council.
Tracey joined the Health Quality Council as a Researcher in April 2005. Before joining the HQC, Tracey was a Project Coordinator with the Ontario Tobacco Research Unit. In her role at HQC, she specializes in mentoring and coaching improvement teams, with a focus on developing and using measures for improvement. She has contributed to improvement initiatives in drug management in long-term care, chronic disease management, Clinical Practice Redesign(TM), and leadership for improvement.
She was also a faculty member and coach for the Quality Improvement Consultant Program.Tracey holds a Bachelor of Science (High Honours) in Microbiology and Immunology from the University of Saskatchewan, and a Master of Science in Health Care and Epidemiology from the University of British Columbia. In 2009, Tracey completed the Advanced Training Program in Health Care Delivery Improvement, from Intermountain Healthcare in Salt Lake City, Utah.